If your child has sudden, repetitive movements or sounds they can't control, it might be tics or Tourette Syndrome - but don't panic! Most tics are temporary and many children outgrow them. Even children diagnosed with Tourette Syndrome can live completely normal, successful lives. The key is understanding, support, and working with your healthcare team. Remember: tics are NOT your child's fault, and punishing them only makes things worse.
What Are Tics?
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Tics are sudden, brief, repetitive movements or sounds that a person makes involuntarily (apne aap hone wali harkat). Think of it like a sneeze or hiccup - your child feels an urge building up and then releases it.
Types of Tics:
Type
Examples
**Motor Tics (Harkat wale)**
Eye blinking, shoulder shrugging, head jerking, facial grimacing, jumping
**Vocal Tics (Awaaz wale)**
Throat clearing, sniffing, grunting, humming, repeating words
**Simple Tics**
Single, brief movements (eye blink, sniff)
**Complex Tics**
Multiple movements together or longer actions
What Is Tourette Syndrome?
Tourette Syndrome (TS) is a neurological condition where a child has:
Both motor AND vocal tics
Tics occurring multiple times a day, nearly every day
Tics lasting for more than one year
Symptoms starting before age 18
Important: The media often shows people with Tourette's shouting swear words (called "coprolalia"). This only affects about 10-15% of people with TS! Most children with Tourette's never develop this symptom.
When Do Tics Usually Start?
Timeline:
Peak onset: 5-7 years of age
Worst phase: Around 10-12 years (puberty ke aas-paas)
Improvement: Often decreases in late teens and adulthood
Complete resolution: About 1/3 of children see tics disappear completely by adulthood
Reassurance: Tics often look worse than they feel. Many children report the urge to tic is like an itch - uncomfortable until scratched but not painful.
What Causes Tourette Syndrome?
Known Factors:
Genetics (Virasat): Often runs in families
Brain chemistry: Involves dopamine and other neurotransmitters
NOT caused by: Bad parenting, stress alone, vaccines, or anything you did wrong
Risk Factors:
Boys are 3-4 times more likely to develop TS than girls
Having a family member with tics or TS
Premature birth or low birth weight (some studies suggest)
Recognizing Tics: What Parents Notice
Common Early Signs:
Frequent eye blinking (baar baar aankh jhapakna)
Throat clearing that doesn't stop
Facial movements or grimacing
Shoulder shrugging
Sniffing when not sick
Sudden head movements
Tic Patterns:
Tics change over time (one tic may replace another)
They increase with stress, excitement, or tiredness
They may decrease during focused activities (homework, games)
They often reduce during sleep
Children can sometimes suppress tics briefly (like holding back a sneeze)
When to Worry (Red Flags)
Consult your pediatrician if:
Tic-related concerns:
Tics are frequent and interfering with daily life
Tics cause physical pain or injury
Child is distressed, embarrassed, or avoiding activities
Tics have lasted more than a year
Multiple different tics (both motor and vocal)
Other symptoms alongside tics:
Difficulty paying attention (ADHD symptoms)
Repetitive behaviors or thoughts (OCD symptoms)
Anxiety or depression
Learning difficulties
Sleep problems
Sudden onset concerns:
Tics starting suddenly after infection (could be PANDAS)
Very severe tics appearing overnight
Tics with fever or behavior changes
Diagnosis: What to Expect
There is NO blood test or scan for Tourette Syndrome.
Diagnosis is based on:
History: Doctor asks about tic types, duration, and pattern
Observation: Watching for tics during examination
Rule out other causes: May order tests to exclude other conditions
Time: Must have tics for at least 1 year for TS diagnosis
Specialists who can help:
Pediatric neurologist (Bachon ke brain specialist)
Developmental pediatrician
Child psychiatrist
Clinical psychologist
Treatment Options
Good News: Many Children Need No Treatment!
If tics are mild and not bothering your child, you may just need to wait and watch.
When Treatment Is Needed:
1. Behavioral Therapy (Most Effective!):
CBIT (Comprehensive Behavioral Intervention for Tics)
Teaches child to recognize tic urge
Trains competing response
Very effective, no side effects
Available in major Indian cities
Habit Reversal Training
Similar approach
Works best for simple tics
2. Medications (Dawa):
Type
Use
Examples
Alpha-agonists
First line, mild side effects
Clonidine (Arkamin)
Antipsychotics
For severe tics
Risperidone, Aripiprazole
Botox injections
For specific severe motor tics
Only in specialized centers
Important: Medications don't cure tics - they reduce them. Benefits must be weighed against side effects.
3. Managing Co-occurring Conditions:
ADHD medication if attention issues present
Therapy for anxiety/OCD
Learning support if needed
Living with Tourette Syndrome: Practical Tips
At Home (Ghar Par):
DO:
Accept tics without drawing attention
Provide a "safe space" where child can tic freely
Maintain regular sleep schedule (neend ka routine)
Reduce stress when possible
Celebrate strengths and achievements
Talk openly about TS with child
DON'T:
Tell child to "stop doing that"
Punish or shame for tics
Let siblings tease
Hover or watch constantly
Make tics the focus of family life
At School (School Mein):
Request accommodations:
Extra time for tests (tics can slow writing)
Breaks when tics increase
Seating away from distractions
Permission to leave class briefly if needed
Educate teachers about TS
Talk to teachers about:
Not punishing for tics
Not asking child to suppress tics
Addressing bullying immediately
Focusing on child's abilities, not tics
With Extended Family (Joint Family):
Common challenges and solutions:
"Control kar, naatak mat kar" - Educate that tics are NOT drama
"Kuch to kami hai" - Reassure that TS doesn't mean low intelligence
"Shaadi kaise hogi" - Many people with TS have successful relationships
Share educational materials with grandparents, aunts, uncles
Associated Conditions
Children with Tourette Syndrome often have other conditions too:
Condition
Percentage with TS
What It Means
ADHD
50-60%
Attention and hyperactivity issues
OCD
30-50%
Repetitive thoughts/behaviors
Anxiety
30-40%
Excessive worry
Learning difficulties
25-30%
May need extra academic support
Sleep problems
25-50%
Difficulty falling/staying asleep
Important: Sometimes these associated conditions cause more trouble than the tics themselves!
Resources in India
Where to Get Help:
NIMHANS, Bangalore - Excellent pediatric neurology department
AIIMS, Delhi - Comprehensive evaluation and treatment
CMC Vellore - Specialized pediatric services
Private pediatric neurologists - Available in major cities
Support Groups:
Tourette Association of India - Online resources
Parent support groups - Available on Facebook, WhatsApp
School counselors - Can help with accommodation plans
Expert Insight: As our pediatricians remind parents: 'Milestones have wide ranges. Focus on progress, not comparison.'
FAQs
Q: Is Tourette Syndrome curable?
A: There is no cure, but many children improve significantly with age. About 1/3 of children see tics disappear completely by adulthood. For others, tics become milder and more manageable.
Q: Will my child shout bad words?
A: Probably not! The involuntary swearing (coprolalia) that media shows affects only 10-15% of people with Tourette's. Most children never develop this symptom.
Q: Is this my fault? Did I do something wrong during pregnancy?
A: Absolutely not! Tourette Syndrome is a neurological condition with genetic factors. It's not caused by anything you did or didn't do. No bad parenting, no vaccine, no specific food causes TS.
Q: Can my child still succeed in life?
A: YES! Many successful people have Tourette Syndrome - doctors, lawyers, athletes, artists, businesspeople. With support and understanding, your child can achieve anything they set their mind to.
Q: Should I tell people about my child's diagnosis?
A: This is a personal decision. However, educating teachers, close family, and friends often helps create a supportive environment. Let your child have input as they get older.
Q: My child's tics get worse during exams. What can I do?
A: Stress increases tics - this is normal. Help with stress management, ensure good sleep before exams, request extra time if needed, and remind your child that tics during exams are okay.
Q: Are there any famous people with Tourette Syndrome?
A: Yes! International examples include soccer star Tim Howard, musician Billie Eilish, and many doctors, actors, and entrepreneurs. Many successful Indians have managed tics throughout their careers.
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This article was reviewed by a pediatric neurologist. Last updated: January 2025
Concerned about your child's tics or repetitive movements? Chat with Babynama's pediatricians on WhatsApp for guidance on next steps.
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